Tuesday, August 4, 2009

President Obama’s Medicare Welcomes the Grim Reaper, Part II

The healthcare debate is gathering momentum because people are beginning to understand what the government is intending.

What the government is intending, of course, is controlling who lives and who dies, who gets treatment and who doesn’t.

I’ve already addressed this intention via the President’s repeated public statements, and how certain phrases are repeated, mantra-like, so that they will become embedded in the public mind.

That’s why the President is constantly in media-blitz mode, repeating the same themes time after time. He does that because he wants you to believe certain things and not believe other things. He’s intent on bending public opinion to his will.

My favorite propaganda theme? Well, the President has a way of explaining things about healthcare in terms of “making people healthier.” Over and over again, in print, all over television, town hall meetings, and YouTube chats, the drumbeat is healthier is the administration's goal.

However, as far as I can tell, nobody has ever challenged the President with this question, so let me try:

President Obama, you repeatedly emphasize how your heathcare proposals will “make people healthier.” What does that mean for people who have no hope of becoming healthier? What of people with chronic conditions, disabilities, and the elderly?

I’m not holding my breath for an answer.

So, we need to look for clues. Let’s say among people on Medicare (the elderly, people with disabilities, and those with chronic health conditions).

Let’s go to HR 3200, the 1,017 behemoth healthcare bill that many of our public representatives arrogantly admit to not reading.

Despite what some of our representatives say, the language of the bill is quite plain. The clues are there, but you must read carefully not only for what is said, but for what is not said.

Exhibit 1: Advocates insist that the bill says absolutely nothing about end-of-life counseling being “mandatory.” Well, the bill first describes what this ‘advance care planning consultation’ will look like, and then says this:

the term ‘advance care planning consultation’ means a consultation between the individual and a practitioner described in paragraph (2) [doctor, nurse, or nurse practitioner] regarding advance care planning, if . . . the individual involved has not had such a consultation within the last 5 years . . . An advance care planning consultation with respect to an individual may be conducted more frequently . . . if there is a significant change in the health condition of the individual, including diagnosis of a chronic, progressive, life-limiting disease, a life-threatening or terminal diagnosis or life-threatening injury, or upon admission to a skilled nursing facility, a long-term care facility (as defined by the Secretary), hospice program.

So, if you’re “healthy,” such a consultation will be every 5 years. If you get less healthy, you might have more consultations as your state of health declines.

Here’s the deception that the pro-death lobby doesn’t want you to understand: If this bill becomes law, there is no way that it will not be a mandatory requirement.

Why??

Because nowhere in the bill does it say that the “consultation” is OPTIONAL.

Now, if a law says something is not optional, then there’s only one other way to interpret its legal intent: Yes, mandatory.

Wouldn’t surprise me at some point, if this becomes law, and people finally wake up, they might hear the administration say the following:

Well, we never said it would be mandatory, I think we can all agree on that. We just made sure that it wasn’t optional.

Gotcha!!!

Doublespeak is not new, but it’s still chilling.


Tuesday, July 21, 2009

President Obama’s Medicare Welcomes the Grim Reaper

The healthcare debate is raging.

It should.

But it’s not raging enough, if you ask me.

Think about it: Politicians voting on bills they admit they haven’t read (healthcare will be no different), and a President pushing a healthcare bill that, by his own admission, has provisions that he’s “not familiar with

No matter.

For President Obama, it’s all urgent, urgent, urgent. The time for talk is over. The time to act is now.

I suggest part of the urgency is a sleight of hand to enshrine the culture of death in law.

Why? Because bureaucratized death stalks the droning sea of its thousand-odd pages.

I’m referring, of course, to H.R. 3200, the “healthcare” bill, euphemistically described as a bill “To provide affordable, quality health care for all Americans and reduce the growth in health care spending, and for other purposes.”

George Orwell, wherever he is, must be very proud.

Like my President and many of our representatives, I haven’t read the entire 1,017 pages of the bill, but I did find a chilling section that we’d better talk about.

Now.

If we don’t, and this bill becomes law, people will die at the behest of the administration’s apparatchiks, the new foot soldiers of death by paperwork, decided in dingy government offices.

Cold, remote-controlled death. 8 to 5. In your best interests, of course.

Buried on pages 424-434 of the bill, in a section headed “Advance Care Planning Consultation” the first target are those covered by Medicare.

Pop quiz: Who are the people covered by Medicare in the US?

Answer: People over 65, people with disabilities, and specifically (more in Part II) patients with end-stage kidney disease and those with ALS (Lou Gehrig’s Disease).

Among the usual, pious explanations about advance care directives (living wills) and health proxies (someone to decide on your behalf if you are unable to do so) is the true intent: Killing off people who cost too much.

Now it’s not written that bluntly, but it’s there, nevertheless.

Side bar: Remember that the President is on record explicitly saying that decisions are going to be made about who gets care and who doesn’t, and that the elderly and disabled will just have to suck it up when they’re on the losing (sorry, cost-effective) end.

I’ll say more in Part II, but here’s a taste:

Citizens receiving Medicare (elderly, disabled, etc.) will be required to have a mandatory “Advance Care Planning Consultation” every 5 years. That’s if you are healthy but over 65. If your medical condition deteriorates, then these consultations will become more frequent.

These “consultations” will include advice on “the continuum of end-of-life services.”

Stay tuned – “end of life services,” as defined in the bill, will include withdrawal of “artificial” nourishment and hydration.

Just saying: Let’s assume you’re in a coma. Some desk jockey reads your file. (That is, when they’re not on their union-sanctioned lunch and other breaks). You can’t eat, you can’t drink. You are on “artificial” nourishment and hydration.

This costs money. Your quality of life is poor. Others, who have a better chance at a “quality of life,” will benefit more. Rules must be followed. The law must be obeyed. The checklist must be diligently filled out. Thumbs up, thumbs down. Gotta watch the clock. Five o’clock traffic is bad.

A final thought: There’s nothing explicit about assisted suicide being on the continuum of “end-of-life-services.”

BUT: Don’t forget, in Oregon and Washington, and, for now in Montana, assisted suicide is most certainly a state-sanctioned legal “end-of-life-service.” Ask Barbara Wagner, who was denied expensive meds to comfort her terminally ill condition, but whose state commissars offered to pay for a much cheaper alternative: The drugs that would help her to commit (legal) assisted suicide.

Stay tuned for Part II, especially if you have, or will have at some point in your life, involvement with Medicare.


Wednesday, July 15, 2009

UK: Might You Die Because You are Unable to Say You Want to Live?

There is no doubt that Baroness Campbell of Surbiton made the difference in a very important debate in the UK House of Lords last week.

Speaking in opposition to an amendment proposed by Lord Falconer, which sought to decriminalize the actions of people who help others commit suicide, the good Baroness delivered a compelling speech that was the main reason the amendment was defeated.

Baroness Campbell, born with a degenerative muscular condition, understood the implications of the amendment, which was generated by the intense reporting over the last few years of many UK citizens, who, accompanied by others, had travelled to Switzerland for assisted suicide at the Dignitas clinic (here, here, here, here).

Ahead of the debate, Baroness Campbell penned a persuasive public letter laying out her position. ISDB, along with a number of other US and UK disability advocacy organizations, was a signatory to the letter.

Last Sunday, Baroness Campbell detailed her struggles and her ultimate conviction that her life was worth living.

She also noted that in one hospital emergency, where she was unable to speak for herself, she was lucky to have had her husband Roger there to speak for her, because it was clear that the doctors were going to let her die, and had already agreed on a “do not resuscitate” order, ostensibly because of her poor quality if life.

I was horrified to learn that it was only after Roger showed the doctors a photograph of Baroness Campbell getting an honorary doctorate in law from Bristol University that they were persuaded that she did, indeed, have a good “quality of life.”

That’s what we’ve come to: Having to prove to our doctors that our lives are worth living, and therefore worth saving.

Is there still anyone who thinks that, had Roger not been at his wife’s side, that she would be giving an interview in her sunny garden last Sunday?

Is there still anyone who doesn’t think that among the many thousands of people with medical and other disabilities that turn up alone in UK hospitals in similar circumstances, that many are allowed or encouraged to die even if they want to live?


Thursday, July 9, 2009

ISDB Signatory to Baroness Campbell’s Letter Opposing Proposed UK Pro-Assisted Suicide Amendments

Last week, in London, a motion was introduced in the House of Lords to strike down legislation that allowed for the prosecution of anyone helping another commit suicide. The motion was introduced by Lord Falconer to protect those who travel with another person seeking assisted suicide in foreign countries, and who then risked prosecution when they returned to the UK.

The motion was defeated, in part, because disability advocates and organizations in the US and the UK, including ISDB, joined as signatories to an opposing letter written by Baroness Campbell, a member of the House of Lords who has a disability.

Open Letter from Leaders of Disabled People’s Movement in UK and USA

Dear Sir,

As leaders of the disabled people’s movement in the UK and the USA, we are extremely concerned about how the proposed amendment to the Coroners and Justice Bill will impact on the lives of disabled people.

If Lord Falconer’s amendment succeeds in the House of Lords on Tuesday 7 July then those who assist ‘terminally ill’ people to go abroad to end their lives in ‘suicide clinics’ would be immune from prosecution.

The phrase ‘terminally ill’ is not defined in the amendment, and could apply to people with a very wide range of chronic progressive illnesses some with life expectancy stretching to decades. Disabled people who experience progressive conditions understand far more than non-disabled people about what it is live with these pressures. We know what is acceptable as disease or disability progresses, and for the huge number of us who say no to assisted suicide, it is because we fear the changing culture such an amendment would bring. People without experience of disability, including our friends and families cannot predict what each stage of our personal journey will mean. Furthermore, financial and emotional conflicts of interest will always present an added burden to the situation. A law decriminalising assisted suicide would undoubtedly place disabled people under pressure to end their lives early to relieve the burden on relatives, carers or the state.

These concerns are not side issues that only affect disabled people. We are like society’s ‘canaries in the coalmine’ who can often see the dangers of potentially discriminatory legislation before others, as it impacts on us even before the deed is done. We are scared now; we will be terrified if assisted suicide becomes state-sanctioned.

The existing law, with the penalties it holds in reserve, causes potential assisters and those wishing to die, to think very carefully before acting. The discretion within the current law enables judges to exercise compassion in hard cases. What is not broken does not need fixing.

Disabled people have been largely silent in this debate which has been carried out in the media by clerics, non-disabled commentators and a small handful of individuals with terminal conditions who are supported by Dignity in Dying. Until people like us are present to engage in this highly complex and ethical debate, we must strongly oppose any device such as Lord Falconer’s amendment to get assisted dying in through the back door.

Baroness Campbell of Surbiton

Crossbench Peer

Liz Sayce, CEO, RADAR

Julie Newman, Chair, United Kingdom Disabled People’s Council (UKDPC)

David Morris, Chair of Independent Living Alternatives

Haqeeq Bostan, Director of New Disability Policy Forum

Diane Coleman, President, Not Dead Yet

Rachel Hurst, Disability Awareness in Action

Mike Smith, Chair, National Centre for Independent Living

Colin Revell, CEO, NeuroDiversity International (NDI)

Marilyn Golden, Disability Rights Education and Defense Fund (DREDF)

Alison Davis, National Coordinator, No Less Human

Dr. Mark Mostert, Director, Institute for the Study of Disabilities & Bioethics (ISDB)

Alice Maynard, Director, Future Inclusion

Linda Burnip, Executive Health and Safety Officer for Warwickshire and Coventry CDP

Liz Crow, Roaring Girl Productions

Stephen Drake, Research Analyst, Not Dead Yet

Adrian Whyatt, Chair, NeuroDiversity International (NDI)

Keith Armstrong, Historian, writer, musician and video maker

Dawn Willis, Activist/Trainer affiliated to RETHINK

Professor Colin Barnes, Centre for Disability Studies, University of Leeds

Louise Clifford, Daughter of Max Clifford

Leonard Zandrow, General Counsel, National Spinal Cord Injury Association

Ann Macfarlane OBE, Kingston CIL

Andrew Bruce, East Sussex CIL Development Worker

Tara Flood, Director, Alliance for Inclusive Education

Andrew Little, Director, Ahead Disability Equipment & Consultancy LLP

Alison Cater, Director, Ahead Disability Equipment & Consultancy LLP

Janice Ollerton, Disabilities Studies Researcher/Activist (Australia)

Joseph M. Camilleri, CHAIR, Kummissjoni Nazzjonali Persuni b'Dizabilità (Malta)

Julie McNamara, Activist / Director Crossings Theatre

Kate Nash, Not Dead Yet

Roxanne Homayoun, Direct Action Network

Dr Ju Gosling, Chair, Regard

John W. Smith, Coordinator Disabled Peoples Alliance, Northamptonshire

Kelly Buckland, Executive Director, National Council on Independent Living


Wednesday, July 8, 2009

Tolerance Ends, Animus Arises Where Disability Begins

Cyberspace has been alive with discussions of a hit piece written by the Huffington Post’s Erik Sean Nelson. Nelson used the now well-worn epithets of being retarded in commenting on Sarah Palin’s resignation as Alaska Governor last week.

The piece was pulled almost immediately, but not before several media watchdog groups had downloaded screen captures. Nelson swiftly offered an apology for what he wrote, but not for the way he thinks about people with disabilities.

I’ve decided to share the piece in it’s entirety because it reveals the palpable animus toward people with disabilities that’s alive and well in the US.

Penned as a “humorous” piece (it’s not), had this been written about almost any other group of people (take your pick: minorities, women, on and on) there would have been nothing less than a media firestorm that would have had the potential to wipe the Michael Jackson coverage from our TV screens.

However, Nelson is in good company. It wasn’t too long ago that Rep. Charlie Rangel (D-NY) repeatedly said, on the record, that Sarah Palin was retarded. And don’t let’s forget President Obama cheerfully noted that he bowls like a retard.

Just so that it’s clear: Palin is targeted in this way because Trig has Down Syndrome.

Funny, I don’t recall anything like this ever being said about a person in the Kennedy family who had mental retardation.

Here’s Nelson’s vitriol:

Palin Will Run in '12 on More Retardation Platform

In Sarah Palin's resignation announcement she complained about the treatment of her son Trig who always teaches her life lessons. She said that the "world needs more Trigs, not fewer." That's a presidential campaign promise we can all get behind. She will be the first politician to actually try to increase the population of retarded people. To me, it's kinda like saying the world needs more cancer patients because they teach us such personal lessons.

Her first act as President: To introduce a Pre-K lunch buffet that includes lead paint chips. Sort of a Large HEAD-START Program.

She will then encourage women to hold off on pregnancies until their 40's just to mix up some chromosomes.

She now is in favor of abortion only in case of diploid birth.

Her policies will increase jobs because Wal-Mart is building new stores each day and someone has to be the greeter.

This will lead to smaller government because fewer Americans will have the cognitive ability to hold a government job.

Look, she says she's resigning as governor because people are making attacks on her and Trig. If she ever did become president, all Osama bin Laden would have to do to defeat the United States is Photoshop a picture of Trig and she'd surrender the country that night. As she said, "That's not politics as usual." It isn't. Politicians don't usually quit for so stupid of reasons.

I’m sure you’re all laughing your heads off.

A final thought: A raft of disability advocacy groups have been stunningly silent on this issue. They get their alerts, they read the blogs every day, and are lightning quick to defend against the kind of bigotry that Nelson showed.

They’ve been AWOL here.

Why? Do they believe that for Sarah Palin and her son Trig this kind of nastiness is OK?

Monday, June 29, 2009

President Obama: Potential for Getting Healthy? You Win!!

Let’s be clear: President Obama’s push for healthcare reform will significantly change the way people with serious medical conditions, especially among the elderly, those with disabilities, and the terminally ill, will be treated.

Well, not treated, actually.

There’s no doubt that the President’s message, hammered relentlessly at every turn, is made in starkly economic terms – that medical care is very expensive, costs need to be controlled, and resources have to be allocated in new ways.

That’s half the pitch.

Here’s the other half: Because of this problem, it’s important to see which groups of people disproportionately consume the lion’s share of medical care dollars.

We already know: People with disabilities, people with serious chronic illnesses, the terminally ill, and the elderly.

The president hasn’t gotten around to making his economic case about people with disabilities yet, but he has in terms of the elderly and the terminally ill. My take is that among the targeted groups, it’s the disability community that will raise stiff opposition. The elderly and the terminally ill are more vulnerable, and are less likely to protest.

Let me put the president’s strategy more bluntly:

"Medical care is expensive. Some people get a lot of care, others very little. Many people who get a lot of expensive care are the elderly, those with disabilities, and those who are probably not going to ever be as healthy as they used to be. We don’t have the money to pay for every expensive procedure for everyone, so we need to decide who gets the care that’ll give us most bang for the buck."

The President doesn’t say it this way, instead he uses a euphemism it’s hard not to like: Health. We must give medical care to make people healthier.

Note what’s not said: If you have no prospect of getting healthy, then the government needs to step in and decide whether or not you are worth getting the treatment.

President Obama drive this point home in his interview to the New York Times in April (all italics are mine):

And part of what I think government can do effectively is to be an honest broker in assessing and evaluating treatment options. And certainly that’s true when it comes to Medicare and Medicaid, where the taxpayers are footing the bill and we have an obligation to get those costs under control. And right now we’re footing the bill for a lot of things that don’t make people healthier.

The president drummed the “Health” theme again in his ABC News Health Care Forum at the White House last week:

But here's the problem that we have in our current health care system, is that there is a whole bunch of care that's being provided that every study, every bit of evidence that we have indicates may not be making us healthier.

And later:

And in terms of how doctors are reimbursed, it's going to be the same system that we have now, except we can start making some changes so that, for example, we're rewarding quality of outcomes rather than the number of procedures that are done. And this is true not just for doctors, it's also true for hospitals. One of the things that we could say to hospitals is, reduce your readmission rate, which is also often a sign that health outcomes have not been so good.

Now, we've put forward some specific ways of paying for the health reform that we talked about. About two-thirds of the cost would be covered by re-allocating dollars that are already in the health care system, taxpayers are already paying for it, but it's not going to stuff that's making you healthier.

Prediction: If the President has his way, expensive medical care will be redirected to the winners in this money game, those who have the potential to be healthier.

If you have a disability, if you’re elderly and in poor health, or if you have a severe chronic or terminal condition, you lose.


Monday, June 15, 2009

Charlie & Jessica: A Story the Pro-Death Folks Don’t Want You to Read

For those of us doing our best to counter the spin, propaganda, and outright lies that the pro-assisted suicide and euthanasia folks regularly crank out, it’s understandable that we sometimes miss stories that make our points quite elegantly.

Don’t miss this UK story, written by Charlie Uttley, a TV presenter, about his relationship with his mother, Jessica, who is terminally ill with cancer.

Here is a story of love, care, and warmth. It’s even got some very dark humor. Charlie’s piece opens with a description of a song he wrote for his mother:

Not long ago, I wrote a song with an ex-Cambridge Footlight friend of mine called Smother Mother. The opening verse includes the lines: 'Why should comfort be dependent on a pharmacy of pills, when one well-disposed descendent and a pillow cures all ills? Smother, smother, smother, smother mother.'

The loudest laughter came from Jessica.

What’s most remarkable about the story is it counters just about all the points the other side uses to frighten and mislead people. Charlie shows that while caring for Jessica is no picnic, it’s not the horrible torture and hell that the pro-death side says most of us will face as our lives come to an end.

Here, along with some suffering, to be sure, is true dignity, true joy, and a palpable sense of love.

Love and dignity are not helium-filled plastic bags. They are not cold, calculated killings in a dingy apartment in Switzerland. 

No, the exemplars of love and dignity are Charlie and Jessica.

Monday, June 1, 2009

Pro-Death Propaganda Steals the Show in the UK

I’m human, just like everyone else, and so when I make a prediction that turns out to be correct, I have been known to say, “I told you so.”

Last January 12th I wrote of assisted suicides at Dignitas in Switzerland, which are hardly gentle and loving:

Here’s the kicker: This nightmare will hardly engender much shock or outrage, I’m afraid.Why? Because the spin and pressure will be to pass laws to make places where people kill themselves nice and comfy, clean, and warm.

Well, I told you so.

A while back, I wrote that the UK was now ground zero for the pro-death movement, currently focusing on the thin end of the wedge, assisted suicide. Assisted suicide is a wedge because the ultimate aim of the pro-death movement is not only legalization of assisted suicide, but also the eventual legal availability of euthanasia for anyone, at any time, for any reason.

I have also written quite a bit about the Swiss killing group, Dignitas (here, here, here, here), who are happy to help kill people – for a price.

Dignitas has become infamous lately because of the many people from the UK who have flocked to their killing facility (read: grubby apartment, strange looking people) in Switzerland. Many of these cases have been widely reported in the media. Dan James. Craig Ewert. The list goes on and on.

I predicted that instead of revealing the lie that assisted suicide is a heinously selfish and soulless act, the pro-death spin would be that the UK laws would be made to be the culprit – that’s it’s not fair or kind to ship people off to unfamiliar places in Europe to commit assisted suicide. They should be allowed to do it at home in familiar surroundings.

Ergo, it’s the LAW that’s the problem, not helping killing people.

Today I’m saddened, but not surprised, that the UK pro-death spin was exactly what I said it would be. 

Read on.

The pressure is building inexorably in the UK to overturn the laws that make assisted suicide illegal on at least two fronts.

The first is the persistent Debbie Purdy, who has multiple sclerosis. She has already made the decision to got to Dignitas to be killed, and wants her husband to be there. She has petitioned all of Britain’s lower courts to clarify whether he will be prosecuted for aiding and abetting her suicide when he returns to the UK. They have all refused to do so. Tomorrow, Purdy takes her case to the highest court in the land, the House of Lords.

It’s important to note that others who have done this have not been prosecuted, but Purdy wants more: She wants the law to say unequivocally that there will be no legal action.

Second, a major piece in today’s edition of London’s Mail reported that there are currently almost 800 people lined up to be killed in Switzerland. 34 have been cleared by their doctors for assisted suicide because they are terminally ill and supposedly competent to make the decision. Others have already set their dates with death. 

This is all bad enough, but, again, let’s look at the media propaganda:

The number of Britons thinking of travelling to the Dignitas suicide clinic in Switzerland has almost reached 800. The figure is ten times the level of seven years ago.

Spin 1: The numbers are increasing, we must do something, this is a growing problem! There is a demand for assisted suicide by the British people!

Well, to me, we might want to ask why there is such a demand. Could it be the pro-death mission of fear, especially playing on peoples’ fear of abandonment, is meant to make more people want to die by assisted suicide?

More:

There is massive public support for a change in the law to allow assisted dying, with polls regularly showing more than 80 per cent of the public want it made legal.

Sarah Wootton, chief executive of Dignity in Dying, which campaigns to allow assisted suicide, said: 'There is clearly a growing demand for a well regulated, legal right for people with terminal illness who are mentally competent to end their life if they choose to.'

Spin 2: If the majority want it, it must be right. Laws should be changed if 8 out of 10 people think they should be changed. That’s how we’ll make it safe and legal for you to have someone help you kill yourself.

Really? Let’s remember that history is full of examples where some very nasty things happened based on popular opinion. Sterilization comes to mind. I’m willing to bet that most of the 80% are significantly misinformed – no, lied to – and that they are responding to pro-death propaganda.

Let’s continue:

The 1961 Suicide Act criminalises anyone who aids, abets, counsels or procures someone else's suicide, and some relatives have been questioned by police.

Oh my gosh!!! The police questioned some relatives related to their possibly breaking the law? What’s next? Public executions? (Pardon the sarcasm).

I repeat: In all these very high-profile cases, what the UK authorities have actually done is turn a blind eye to these goings-on. Seems to me that if they had followed the letter of the law diligently, a lot of relatives who helped kill people at Dignitas would already be charged, found guilty, and be in jail.

But it’s the spin, you see - implying that those big bad Bobbies are hauling off vanloads of poor grieving relatives to languish in the basements of Her Majesty’s Prisons.

Ergo:

Baroness Jay said: 'It's a tragic anomaly that people who are giving a last loving assistance to a loved one find themselves under the threat of imprisonment.'

So, you know what comes as the climax of the piece, don’t you?

Read on:

Lesley Close, who went to Dignitas in 2003 with her brother John, a sufferer from motor neurone disease sufferer, said: 'More and more British people will be travelling to Switzerland to die because more people are aware of the compassionate and peaceful death you can achieve there . . . The interest in Dignitas underlines the case for reform of the law. We need the same facility here.'

Big bad law. Big bad Bobbies. So uncaring of those saints who are helping kill people.

Nice gentle, compassionate Dignitas, where all is dappled light and calm.

However, the truth will out, in my opinion, because there’s no future in assisted suicide.



Tuesday, May 12, 2009

Is Obama the First Pro-Euthanasia President?

There’s been very little attention paid to an interview President Obama did with the New York Times the day of his major speech at Georgetown University on April 14. I was especially interested in the section of the interview dealing with health care, and to learn of the President’s perceptions of end-of-life issues. It’s not pretty. Read on.

For starters, President Obama opined:
I have always said, though, that we should not overstate the degree to which consumers rather than doctors are going to be driving treatment, because . . . when it comes to medical care; I know how to ask good questions of my doctor. But ultimately, he’s the guy with the medical degree. So, if he tells me, You know what, you’ve got such-and-such and you need to take such-and-such, I don’t go around arguing with him or go online to see if I can find a better opinion than his.
Well, yes and no.

But the President’s slant is immediately concerning, because there’s a fine line between medical expertise and Doctor Power. What if the doctor says, “Well, you’ve got two weeks to live, and your quality of life is very poor, and all the expensive care we can give you will not help a bit, but assisted suicide is legal, quick, and very inexpensive?’ Should I then accept this pronouncement because he’s “the guy with the medical degree?”

If you think I’m stretching things a bit, it’s because of what came next from the President:
And part of what I think government can do effectively is to be an honest broker in assessing and evaluating treatment options. And certainly that’s true when it comes to Medicare and Medicaid, where the taxpayers are footing the bill and we have an obligation to get those costs under control. And right now we’re footing the bill for a lot of things that don’t make people healthier.
Not too hard to see the spin here. Now we’ll get the government saying, “OK, seeing that we pay for your medical care, we’re going to decide what care you get and what care you can’t have.”

And, more darkly, the specter of futile care emerges, because what the President was saying was, “If we’re paying for stuff that doesn’t make you healthier, we need to reconsider whether we want to pay for this treatment.”

Note the phrase is “to make you healthier” - not to alleviate your symptoms, or provide you with comfort care because you’re never going to get healthier.

Simple: If treatment makes you healthy again, you get it. If it can’t, you can’t have it, because we need it for people who can get healthy again.

Pure, unadulterated futile care.

Here’s what will happen, trust me:

The government already knows that medical care in the last weeks of life is where most medical dollars get spent. Same goes for money spent on people with significant, although not necessarily terminal disabilities. Marry that to the President’s commitment to cut health care costs, a society that increasingly thinks helping people die is just dandy, and a medical profession that is increasingly utilitarian, and you have the perfect plan to make people with severe medical problems, including those with disabilities, into Useless Eaters.

It got worse.

The President:
So when . . . I talk about the importance of using comparative-effectiveness studies as a way of reining in costs [which] . . . is an attempt to say to patients, you know what, we’ve looked at some objective studies out here, people who know about this stuff, concluding that the blue pill, which costs half as much as the red pill, is just as effective, and you might want to go ahead and get the blue one. And if a provider is pushing the red one on you, then you should at least ask some important questions.
Ah, “comparative-effectiveness,” “objective studies.”

Science in the service of deciding who lives and who dies. Seems like we’ve heard this somewhere before.

Allow me to paraphrase my President:

Doctor to patient: “You know, what, we’ve looked at some objective studies out here, people who know about this stuff, concluding that there’s no point in treating you any further. We’ve concluded that the blue pill, which will keep you comfortable until you die, is very expensive. The red pill, that costs a tiny fraction of the blue pill, can end your suffering quietly, effectively, and with dignity.”

Don’t believe me? See what happened to Barbara Wagner in Oregon, where the state refused an expensive treatment to help her live our her days, but offered to pay the pennies it would cost for her to commit assisted suicide.

But the President went even further, using a personal example when asked about end of life care:
. . . my grandmother got very ill during the campaign, she got cancer; it was determined to be terminal. And about two or three weeks after her diagnosis she fell, broke her hip . . .So now she’s in the hospital, and the doctor says, Look, you’ve got about — maybe you have three months, maybe you have six months, maybe you have nine months to live. Because of the weakness of your heart, if you have an operation on your hip there are certain risks that — you know, your heart can’t take it. On the other hand, if you just sit there with your hip like this, you’re just going to waste away and your quality of life will be terrible. And she elected to get the hip replacement and was fine for about two weeks after the hip replacement, and then suddenly just — you know, things fell apart . . .
OK, a very difficult situation, with difficult, but very common health decisions that needed to be made. BUT, then the President went on, back to setting us up for official pro-death thinking:
Whether, sort of in the aggregate, society making those decisions to give my grandmother, or everybody else’s aging grandparents or parents, a hip replacement when they’re terminally ill is a sustainable model, is a very difficult question. If somebody told me that my grandmother couldn’t have a hip replacement and she had to lie there in misery in the waning days of her life — that would be pretty upsetting.
See? Old, lying in misery in an expensive hospital bed, with a broken hip.

Pretty upsetting. Expensive, too.

What’s a grandson to do?

The President:
Well, I think that there is going to have to be a conversation that is guided by doctors, scientists, ethicists. And then there is going to have to be a very difficult democratic conversation that takes place. It is very difficult to imagine the country making those decisions just through the normal political channels. And that’s part of why you have to have some independent group that can give you guidance. It’s not determinative, but I think has to be able to give you some guidance. And that’s part of what I suspect you’ll see emerging out of the various health care conversations that are taking place on the Hill right now.
Just so you know: Pro-death is going to be more than law. Here's the plan:

Have “conversations” with the public under the guise of measured reasonable argument. Subtly (and not so subtly) use doctors, scientists and ethicists who are pro-death to lead the way. Shape public opinion to utilitarianism, futile care, people as pure economic entities, and then the resistance to assisted suicide, and, eventually, euthanasia, will crumble.

Is Obama our first pro-death President?

I see no evidence that he’s not.

Monday, May 4, 2009

Mostert Live on the Andy Caldwell Show Tuesday, 6.05 pm Eastern

john cena

I'll be back live on the Andy Caldwell Show at 6.05 pm eastern time today, Tuesday, May 5. We'll discuss ISDB's announcement last week that it had filed a friend of the court brief in Montana, appealing a Montana Judge's declaration from the bench that physician-assisted suicide was legal in Montana.

Please join the conversation!

Thursday, April 30, 2009

ISDB Files Amicus Brief Opposing Legalized Physician-Assisted Suicide in Montana

The Institute for the Study of Disability and Bioethics yesterday joined with the Bioethics Defense Fund, and the Pro-Life Legal Defense Fund, in filing a friend of the court brief appealing the legalization of physician-assisted suicide in Montana.

Hard on the heels of last November’s ballot initiative legalizing assisted suicide in Washington State, a Montana trial court judge ruled that Montanans had both a right to die and a right to physician-assisted suicide. The judge made it clear that she understood that Montana had no safeguards in place for physician-assisted suicide, and no legal definitions of the crucial terms competent or terminally-ill, conditions legally specified in both Oregon and Washington. Further, the court indicated that the decision for physician-assisted suicide should be the sole responsibility of physicians, despite there being no legal guidelines specifying how doctors might establish whether a person requesting physician-assisted suicide was competent to do so or not.

Read the filed brief here.

Tuesday, April 28, 2009

ISDB & Disability Matters Co-sponsor Second International Symposium on Euthanasia & Assisted Suicide

The Institute for the Study of Disability & Bioethics, the home of this blog, is pleased to announce our co-sponsorship of the Second-International Symposium on Euthanasia and Assisted Suicide on May 29th and 30th in Washington, DC. The Symposium will be held at the National Conference Center, near Dulles airport.

I will be a keynote speaker, along with Diane Coleman (Not Dead Yet), Dr. Peter Saunders (Care Not Killing, UK), Rita Marker (International Task Force on Euthanasia & Assisted Suicide), Wesley J. Smith (Discovery Institute), Alison Davis (No Less Human, UK), Alex Schadenberg (Euthanasia Prevention Coalition-International), and Margaret Dore, (Seattle elder law attorney).

As readers of this blog know, the gathering storm of legalized assisted suicide and euthanasia continue unabated.

Speaking at a conference in Canada this past weekend, it was clear that the general public have very little information about what’s happening right under their noses, in communities large and small.

A piece about my keynote in the Guelph Mercury laid out very accurately what I see to be our current challenges.

Details for the conference are here.

We’d love you to join us!

Friday, April 17, 2009

When Infants Die

Doc over at Mind, Soul, and Body has a thoughtful piece on some of the most difficult circumstances I can imagine – being faced with the prospect of a dying infant.

Dying infants break our hearts for all kinds of reasons, and parents and loved ones face a titanic struggle between what they face and what they believe.

You see, we carry around in our very beings a plethora of expectations around life, especially around the lives of a newborn:

Nobody should die young.

Parents shouldn’t have to bury their children.

We don’t care if it’s a boy or girl; we just want our child to be healthy.

But that is not what we find in the pediatric ICU. We find very, very sick babies. We find absolutely no prospect of recovery.

There will be no happy photos of first days at kindergarten, school, or college. There will be no endless, badly filmed video that will be played over and over again across the years, with chuckles all the while.

No first love, no getting married in clothes that years later will look so terribly dated.

All gone.

But not yet gone. Before us, a frail form clinging to what could have been.

Doc explains just how disabled and medically vulnerable these children are. His descriptions don’t make for easy reading, but they’re accurate.

He struggles, as do we all, with where to find the compromise between comfort care and the unrelenting reality that sooner, rather than later, every effort will fail.

But, in the end, it’s really not that complicated, because there are essentially two choices.

We can go the route of Peter Singer, who insists we should euthanize these infants, or, in Baroness Warnock’s harsh world, that they should be “put down.” Or we can take note of what happens routinely in the Netherlands, where dying babies are routinely euthanized because they have no hope of a “good quality of life.”

What hideously casual utilitarian decisions!

But, as Doc suggests, there is another, better choice: Supporting the family, gently explaining every option. Using every medical and palliative tool to provide comfort and ease pain. Being patient as families grieve.

All this, because we are dealing with a human life, an exceptional life, no matter how brief. 

A life worth just as much as anyone more perfect. 

Loving and gentle medical care so that whatever time is left can be spent making the memories, brief as they will be, to warm and console hearts after that Long Slow Goodbye


Tuesday, April 7, 2009

Dignitas’ Assisted Suicide for Healthy People

I’m often more than a little bemused when naiveté inevitably results in shock and disbelief.

Why? Because there are two groups of people who generate shock among those who listen to them:

First, there are those who deliberately seek to shock our sensibilities for the sheer delight of seeing the reaction produced. Like grown ups who tell potty jokes at polite dinner parties.

Second, a much more dangerous group: people who say things that are not necessarily meant to shock, but are simply said because they are true. These people mean what they say, and say what they mean.

And then act on what they have told us they would do.

Saying what they believe is not the biggest problem, though – it’s that people react by thinking they cannot possibly mean what they are saying, and so either ignore it, or are disproportionally incredulous.

Incredulous is exactly how the UK press have been acting over statements made by Dignitas founder Ludwig Minelli.

You do remember Dignitas, don’t you? In case you missed previous posts about this outfit, see here, here, here, here, and here.

I’m shocked that the UK press is shocked. Minelli is just saying what he believes, how he intends to proceed, and what his actions will mean.  Minelli wants to  stretch the envelope of whom he helps kill.

He's as serious as a heart attack (sorry, couldn’t resist).

Minelli’s comments are also a rare glimpse past the pro-death spin and propaganda of “dignity,” “autonomy,” and “compassion” into the horrific abyss of twisted pro-death values and deceit.

The Times of London fretted that Minelli ". . . now wants to kill people that are perfectly healthy." 

(Sidebar: That’s the ultimate goal of all this pro-death stuff – death on demand anywhere, any time, for anyone).

Let’s look at what Minnelli actually, and accurately, said:

Ludwig Minelli described suicide as a “marvellous opportunity” that should not be restricted to the terminally ill or people with severe disabilities.

Just to make sure you see the spin: Suicide is not nihilistic, selfish, and probably avoidable. It’s a wonderful act that people should embrace. Oh yes, and by the way, we don’t need to be selfish about it – why should only terminally ill people or those with severe disabilities have access to this “marvelous opportunity?”

See how magnanimous? Marvellous opportunities should be available to all, otherwise it’s discriminatory, don’t you know.

On we go:

Mr. Minelli said that anyone who has “mental capacity” should be allowed to have an assisted suicide, claiming that it would save money for the NHS.

Breathtaking. 

If you have “mental capacity,” suicide’s the thing for you. Note, the mental capacity term is not an accident: Even newborn infants have “mental capacity.” Ergo, assisted suicide for all!!!

If what Minelli means is that assisted suicide should be available for people in their right mind, that’s only a stepping stone to killing people who aren’t in their right mind (e.g., Alzheimer’s patients) when others decide that, were they in their right mind, they would want to commit suicide.

The last part is not a joke – it’s how they justify euthanizing people with impaired “mental capacity” in the Netherlands.

But here’s the coup de grace: Killing people saves the state (the British National Health Service) money.

There. 

No more pretence.

No more backtracking (as many pro-death people do) that saving money is never the intent, although sometimes an unintended consequence, of assisted suicide and euthanasia.

Does anyone really think that the bean counters in any health organization won’t see this as a very tempting idea? Can we say Useless Eaters, anyone?

But, now, finally, to the reason for the fuss (see, nobody these days is too upset about someone spinning assisted suicide & euthanasia as a “marvellous opportunity” or that killing people will save money – that’s old hat).

Everyone got their knickers in a tangle because Minelli was "revealing plans to help a healthy woman to die alongside her terminally ill husband."

Minelli explained:

“The husband is ill, his partner is not ill, but she told us here in my living room that, ‘If my husband goes, I would go at the same time with him’,” he said.

So, Mr. I'll-kill-you-for-any-reason-as-long-as-you-ask is going to do what any champion of a worthy cause would do: He’s going to challenge the Swiss law that bars assisted suicide for healthy people.

Now there’s a really brave, kind man.

Coming soon to a place near you.

Be afraid, be very afraid.